Yup, the bad days continue

Well, it looks like the bad days are continuing...

Last night Maxine & I both noted how if she made it past noon today, then she'd have gone MORE THAN 4 days without a seizure, hopefully an indicator that this isn't yet a rapid decline. It's 10am (Thursday) and so far, no seizure. But, she vomited this morning. And she's been wobbly on her feet, falling several times and staggering quite a bit, since she got up at 7am. I decided to skip going to the gym this morning so that we could both be home with her in case all of this was a prelude to a seizure. But, like I said, so far it is not.

My biggest goal for her this morning is to simply rest quietly, to sleep, and hopefully to get past whatever has her wobbly. We're not sure. Starting with Monday PM she's been on the full pill 2x/day dosage of phenobarbital. Maybe that's kicked in. Or, maybe there's pressure on her brain from the tumor. We don't know, and there's no way to tell. She can't say. We've both noted how horrible it would be to have a sick child...

So, after Sunday's seizure, Cassie's second w/in 4 days, we called Dr. H's office Monday morning. A call back later from Sherie, who works there, was that we should take Cassie's dosage up from 3/4 of a pill to a full pill. And, that we should call to report the seizures as they happened. (We did a favor for Dr. H regarding her recent vacation and we're hoping that she looks kindly on our obsessive concern for Cassie as a result).

It occured to me that perhaps the title of this blog should have been, "Last Months", rather than "Last Days". When I created it I was so unbelievably distraught over what was going on. We are incredibly appreciative that we've had these months with Cassie. She's dying the way my father did, giving us plenty of time to say good bye and get ready. Ally died like my mother, getting noticeably older for a year, then going critical in a matter of a week or 2. I'm not sure which I like better... Or maybe which I like least...