Wednesday, June 1, 2011

Still Still Hanging In There

No real change in status. Which is good.

It's just over 3 months since the first seizure (Feb 25th) and to date, we think she's had 3. That one, which Martha witnessed. One in the evening, where we dealt with the temporary blindness after effects. And the one 2 (?) weeks ago in my office. We're happy with all of that.

I called Cassie Princess Cassie just now. With our schedule tomorrow, Cassie will be alone for appx. 1 hour in the morning, then an hour later in the day. Overall, she's more time alone. This weekend, 2 days with 4.5 hour alone times. Up until then, the longest had been 3 hours. It's sort of funny. On the one hand, we want to get back to fully living our lives, planning travel, not worrying how long we'll be out of the house, that sort of thing. ***BUT*** that sort of living only becomes accessible to us again once Cassie is dead.

I think we both feel a lot more comfortable with that eventuality than we did 3 months ago when it was a complete shock. I can still clearly remember being at the Bandler seminar in Florida, at the end of the day, at the pool and on my cell phone talking to Maxine. She'd tried to get ahold of me several times, but I'd had my phone off through the day and dinner. Cassie'd had her seizure. And, in the 2 weeks that followed, all changed. We put all our summer plans on hold. We spent hours researching meningioma's and had multiple conversations with doctors. An MRI, 2 consults with Dr. H, emails to the neurologist, all of that. And all ending with us cancelling our fall trip to Paris. In effect, everything in our lives on hold in some form or other. Neither of us is signing up for new committments/classes. We check in with each other for Cassie-coverage before we agree to anything that takes us out of the house. We stocked up on softdrinks at Costco. Everything targeted towards a summer at home, waiting out Cassie's life and trying to enjoy her last days and months with her...

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