Tuesday, June 28, 2011

Being Lulled into a False Sense of Comfort

I worry about that. Cassie is coming up on 4 months since diagnosis, and she's passed 4 months since the first seizure. We've lined up a secondary seizure drug to add to the mix if (when?????) it's necessary. Cassie trots around outside. Things feel too under control.

I've got to confess that I like the feeling. I like her being around. I like not being confronted with the imminence of her death. This morning we talked about travel plans for the fall. I think I said something about how earlier on I would have been enormously surprised if she lived through the summer and how now it doesn't feel out of reach.

I don't know if it is or isn't. I just want to continue to notice her, to love her, and to daily say goodbyes in case that is relevant...

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